Transforming patient initiatives with a refocused brand and communications strategy

Leveraging ICG’s empathetic lens to identify core emotional needs

of rare disease patients at key points of contact

The Challenge and The Need

In order to help patients with a rare, genetic disorder (XLH—X linked Hypophosphatemia) and realize commercial success, Insight Consulting Group’s (ICG) client needed a deep, emotional understanding of why patients were lost in the transition from pediatric to adult clinics and the unmet needs driving that behavior.

Our Approach

Because of Insight Consulting Group’s vast expertise in Rare Disease Research and specialization in Patient Ethnography, a mixed methodology approach was utilized that enabled the depth of discovery necessary to unearth every important interaction—leading to a better journey for future patients. Our in-house recruitment team was challenged with a seemingly impossible task of engaging sufficient numbers of target patients in research, but due to our experience in Rare Disease research, delivered results utilizing a range of resources and secured 20 patients with specific demographic requirements and 20 mixed specialty HCP treaters.

Identifying treatment challenges

ICG identified clinical points in care and treatment challenges in addition to gaps in care and unmet core emotional needs. Identifying these roadblocks enabled us to come up with a long term plan.

Developing a long term success journey for patients from infants to adults

Because of the method used, ICG Researchers designed a deliverable that included: Cognitive, Emotional and Social implications, reasons for disengagement, methods to limit patients falling off the grid, and with with recommendations on how to engage each patient with empathy to ensure long-term treatment success.

The Result

The patient journey that was transformed by ICG, clearly identified unmet needs, treatment challenges, and key patient emotions. The research team’s strategic recommendations while engaging each patient with an emotional understanding—were the key inputs our client used in building a new consumer marketing strategy and campaign, as well as refocusing direct to patient initiatives that ensured their long-term treatment success.

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Transforming patient initiatives with a refocused brand and communications strategy

Leveraging ICG’s empathetic lens to identify core emotional needs

of rare disease patients at key points of contact

The Challenge and The Need

Our Approach

Identifying treatment challenges

Developing a long term success journey for patients from infants to adults

The Result

Download Our Case
Study Booklet

FEATURED CASE STUDIES

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Transforming patient initiatives with a refocused brand and communications strategy

Leveraging ICG’s empathetic lens to identify core emotional needs

of rare disease patients at key points of contact

The Challenge and The Need

Our Approach

The Result

Download Our Case Study Booklet

FEATURED CASE STUDIES

PHONE

Address

Download Our Case
Study Booklet