Schizophrenia patients (and caregivers) are difficult to reach so we recruited using different approaches including patient advocacy groups and online advertising
Because of our expertise in approaching research with an empathetic lens and our experience in the rare disease category, we knew that traditional IDIs and focus groups would only give us a snapshot of the patient experience, not the panoramic view that was needed. So, we recommended creating an online community with schizophrenia patients and their caregivers. While a patient community in and of itself is not unique, our approach was innovative because of the daily (and timely) interaction as well as the longitudinal aspect our research platform allows. This approach gave the client a unique opportunity to understand the nuances, behaviorally and emotionally, of the patient experience to identify unmet needs.
Day-to-day iteratively, our moderator noticed the nuances of the patient experience and identified unmet needs in order to develop patient services
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