Submit Your Research Materials
Thank you for your participation! Please upload the required audio and/or video files using the secure form below.
Oncologist Research: Patient Visit Logs
Insight Consulting Group (ICG) is conducting research to better understand treatment decisions for patients with Relapsed and/or Refractory Multiple Myeloma in the 4th line of treatment or later. Our goal is to understand how these patients communicate with their Oncologist, and how these interactions impact their treatment choices and journey.
Methodology Details: Patient Visit Logs
Participation involves creating 2 Patient Visit Logs.
|What is a Patient Visit Log?||A Patient Visit Log is a physician-narrated, recorded summary of a recent in-person or telehealth patient visit.|
|What should be included in my Patient Visit Log?||Each log must describe a visit with a patient with Relapsed and/or Refractory Multiple Myeloma (rrMM) in the 4th line of treatment or later. Each log must include a treatment initiation discussion related to one of the following therapies:
CAR T-cell therapy, Blenrep, Xpovio, or Farydak
|How do I create a Patient Visit Log?||Please use your phone or other smart device to record your video or audio responses to the questions on the next page. Each log should be ~5-10 minutes long.|
|How do I submit a Patient Visit Log?||Please submit your logs using the submission box above.|
NOTE: All patient information provided should be anonymous (please do not share any personally identifying details about patients).
If you have any questions or concerns about the research, please contact Kathryn Magliari, Research Director, at: firstname.lastname@example.org.
Before you Begin
When recording your Patient Visit Logs, please walk us through the details of the visit following the typical EMR flow: please begin with the patient’s treatment history, then describe the purpose of the visit, and then provide a detailed recap of the patient conversation.
Please keep in mind that we are looking for specifics; no detail is too small. Most importantly, we want to understand the language that you and your patient use to discuss 4th line treatment options. It is equally important for us to understand what was said, and how you said it.
We have included questions below to guide your narration, but please respond as you see fit. Thank you!
- Your first name, last initial
- The log topic (IE: “rrMM Research: Video #1”)
- Patient visit details:
- In-person or via telehealth?
- appointment length, in minutes
- Patient’s anonymous details
- Patient’s rrMM history:
- When was the patient diagnosed with Multiple Myeloma?
- How long you have been treating this patient for Multiple Myeloma?
- How would you describe the disease progression?
- Medication history (3rd line + 4th line)
- Patient’s Treatment History:
- Prior to this visit, how was patient being treated for rrMM, and for how long?
- Purpose of visit
Part 2: Treatment Discussion (Critical Content)
- What 4th line + rrMM treatment(s) were under consideration during this visit?
- Why were these treatments the best options?
- Who prompted the discussion (your recommendation, vs. patient request)?
- How did you describe the risks and benefits of each treatment? Please be as specific as possible.
- Which treatment(s) did you ultimately recommend, and why?
- What factors were most important in your recommendation?
- How did the patient respond to your recommendation?
- What were their specific questions or concerns?
- How did you respond?
- Was anyone else involved in the appointment?
- If so, what was their role? What did they say/do?
- Did you or your staff provide any resources or education about your recommended treatment?
- If yes: What was shared (brochures, printouts, websites, etc.) and who shared it?
- If appointment was via Telehealth: Was the patient provided any information about the recommended treatment(s) through the Telehealth platform?
- What were their specific questions or concerns?
Part 3: Reflection
Thinking about all your patients with rrMM in the 4th line of treatment or later:
- How similar or different was your treatment approach in this case, compared to how you typically treat these patients?
- Was there anything unusual or notable about this case that influenced your recommendations? If yes, please explain.
Patient Research: Audio Recording of Your Doctor Visit
- We would like to capture an audio recording of one of your visits with your doctor. This appointment could take place in-person or via Telehealth and include any member of your Oncology care team (Med/Hem ONCs, NPs, PAs, nurses, etc.)
How it Works:
- We will provide you with a Zoom link to record the appointment on your phone OR you may record the appointment on your device and upload to icgimpact.com/rrmm2021.
- We will provide you with a document for your care team that describes the research and confirms their consent.
- Please email Didi at email@example.com